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Celiac Disease Foundation Website

Celiac Disease Foundation Website Review


www.celiac.org



Overall 4.00 of 5 (by 1 user)



Great info on Gluten Intolerance at www.celiac.org
4 star rating

trying to raise healthy kids, a label reader by necessity, a mother of three, family oriented, a nurse, having multiple food sensitivities
Pros

    informative, easy to navigate


JUL
2
2008
 

Colic. Lupus. Type I Diabetes. Crohn's Disease. Eczema. Fibromyalgia. Iron-deficiency anemia. Failure to thrive. Diarrhea. Mouth Sores. Osteoporosis. Irritable Bowel Syndrome. At first sight, you might think that the above conditions would not have something in common. But people experiencing any of the above might: gluten intolerance.

Celiac Disease (AKA Celiac Sprue, Coeliac Disease) is a condition in which people experience various symptoms (or perhaps no symptoms) when they eat/drink anything with even tiny amounts of gluten (from grains such as wheat, barley, rye and sometimes oats). Approximately 1 out of 133 people has celiac disease, but the majority are not diagnosed with this condition. This is a great, informative website about Celiac Disease. It gives information about the disease, symptoms and treatment, which includes a gluten-free diet. Many people are scared of a gluten-free diet, but it really is worth it to be healthier and to have happier, healthier kids. The site offers information from support groups to recipe books (money-saving tip--I tend to check out cookbooks via interlibrary loan and then only buy the ones that truly fit my needs) to links for manufacturers of gluten-free foods. It also contains information regarding FDA labeling, studies and research regarding celiac disease.

I'll share a bit of my own experience so that perhaps it might help someone reading this to put a real face on gluten intolerance and perhaps help you to recognize a possible gluten sensitivity in someone you know:

I did not give food sensitivities and allergies much thought until I had children. By the time I had my second child, I was living on perhaps two hours of sleep per night. The oldest would cry and say her belly hurt in the evening until nearly 2 a.m. After finally getting her to sleep, my second child would wake around 2:30 a.m. and nurse and then begin to cry until nearly 7 a.m. I learned to sleep sitting up or to close my eyes for a "power nap" while reading a children's book that I had already read dozens of times.

After the girls were treated for GERD (reflux), their symptoms improved, but they still had numerous pasty stools every day, a persistent rash on their backs, and we seemed to be constantly battling one infection or another as well as major meltdowns and colic. Sometimes the stools were BRIGHT green, and I found out later this was a sign of a food allergy. It didn't help that the 2 ½-year-old had not gained a pound in a year-she would act so hungry but then say she couldn't eat after two or three bites. If the baby was not eating or sleeping, it seemed like she was crying ALL the time. I would get an early appointment to see the doctor and the girls would fall asleep in the car before I would even get out of the driveway. They would look pretty good at the doctor's office and we would be sent home with a shrug and once with instructions to learn how to let the baby cry--I don't see that one any more. I would feed them something quick and healthy on the way home like Cheerios or pretzels and by the time we got back home the symptoms would be back with a vengeance. I wondered if I was losing my mind, my sanity or if someone were playing a cruel joke. I had recurrent sinusitis and yeast infections, terrible gas, eczema, anemia, and a recurrent sty. It was ROUGH.

Then we tried a gluten-free diet. The symptoms improved dramatically. The nursery workers at the YMCA asked us what I had done with my oldest daughter because she seemed so energetic! The baby become much happier, and I got more sleep-hoorah! We later discovered that the girls had multiple other food sensitivities and we've cut those out as well with good results. By the time I had my third daughter, I wasn't surprised when she also had food sensitivities. Yep-it does take extra effort when my kids are invited to a birthday party and I need to pack special food for them, but it sure beats the alternative.

Check out this website today and learn about this common disorder. Feel free to post any questions you may have or your own story as well.

I_thumb_up Celiac Disease Foundation Website is recommended by Katrena


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I_comment_shdw24 Comments about Katrena’s Review



Katrena wrote on Jul 4, 2008 at 4:02AM


In response to mysticstarfish's comment from Jul 3, 2008 at 11:03PM:

It sounds like you had a ROUGH road early on with your son. It's very hard to watch your own child suffer and to be at a loss to help. I hope your son is healthy and happy now.


mysticstarfish wrote on Jul 3, 2008 at 11:03PM


WOW...I really don't know what to say....I went through the exact same thing with my son starting at 1 week old. He had to be on formula because I was put on antibiotics. It was an absolute nightmare!!! He was hospitalized, mis-diagnosed and then developed an infection from an IV site...really a nightmare.


Katrena wrote on Jul 3, 2008 at 7:56AM


In response to kevin's comment from Jul 3, 2008 at 7:38AM:

I'm so sorry to hear about your father-in-law's difficult diagnosis. They have come a LONG way in diagnosing this condition. I was in nursing school in the early 90's. The only education I received on this was "I hear wheat allergies are really rough." I had no clue, and many healthcare providers today still know almost nothing about it. But the word is getting out and it's much easier to find gluten-free products that actually taste good now too.


Katrena wrote on Jul 3, 2008 at 7:53AM


In response to RudiXeno's comment from Jul 3, 2008 at 4:30AM:

I feel like I could write a book on this subject and the trial and MUCH error I've been through with it!


Katrena wrote on Jul 3, 2008 at 7:53AM


In response to LisaCarey's comment from Jul 3, 2008 at 12:16AM:

Thanks!


kevin wrote on Jul 3, 2008 at 7:38AM


It's great to see you spreading the word about this condition. My father-in-law and his brothers have all been diagnosed as Celiac, although for them onset was mid-life. When he was first coming down with symptoms he was extremely sick and no doctors could help him. This was in the early/mid 80s and he ended up having to be sent to Mayo clinic for rigorous testing. In the last 25 years or so much more awareness has come about, which is a very good thing. It's good to hear that your children are doing better and that information is much more widely available on the web and else where. Great review!


RudiXeno wrote on Jul 3, 2008 at 4:30AM


Very informative.


LisaCarey wrote on Jul 3, 2008 at 12:16AM


Excellent review of the information you found and your journey to get there!


LisaCarey wrote on Jul 3, 2008 at 12:16AM


Excellent review of the information you found and your journey to get there!